A Mother’s Heart: Memoir of a Special Needs Parent by Eichin Chang-Lim. Reviewed by Gabriel Constans.
A clear-sighted, perfectly weighted memoir with balance of experience, insight, and observation. A Mother’s Heart doesn’t stray into un-associated material, and stays right on track, as Ms. Chang-Lim explores what it was like raising their son, Teddy, who is severely hearing-impaired. From his first days as a baby, up through the present (with Teddy now in his 20s), the author conveys the joys, frustrations, and what she has learned being the parent to her son, and her daughter (Victoria).
Upon hearing that her son couldn’t hear, the author writes, “Although the diagnoses was not a surprise, I was still sad and angry. I was angry that the whole universe did not show a shred of remorse for my son’s deafness. I was angry that my husband seemed so calm and in control. I was angry that I blamed myself for my son’s disability.” What she discovers is that her son’s hearing loss was a result of a disease called Waaredenberg Syndrome, though didn’t help much knowing when it came to his educational and social adjustments.
Most everything a parent of a hearing-impaired, or deaf, child needs to know, is either discussed, or mentioned in these pages. Chapter include headings such as, It’s Okay to Cry; A Support System Is Crucial; Early Intervention; Spouse Communication; Motherhood vs. Career; and Choosing the Right Special Education Placement. None of these issues are over-dramatized, or indulged in, nor are they skimmed or minimized. There is just the right amount of honesty, information, and personal frustration shared for readers to easily relate.
Each chapter begins with a perfect quote, such as E.M. Foster’s, “We must be willing to let go of the life we have planned, to have the life that is waiting for us.” Ms. Chang-Lim didn’t plan on having to confront the realities of having a hearing-impaired child, but she has done so with grit and grace. An especially helpful portion is a segment her daughter writes about growing up with her brother Teddy, and how the attention he got effected her, and their relationship as siblings. Whether you have s child with special needs, or not, A Mother’s Heart speaks volumes for mothers and fathers everywhere.